About

Our Mission

Parent Heart Watch (PHW) is the only national voice solely dedicated to protecting youth from sudden cardiac arrest and preventable sudden cardiac death. PHW leads and empowers others by educating and advocating for change.

logo vision 2030 e1473716202878 - About

ELIMINATE PREVENTABLE DEATHS

From Sudden Cardiac Arrest in Youth by 2030

Our Purpose

WE CULTIVATE LOCAL CHAMPIONS

throughout the nation who create community programs that drive the groundswell of demand for SCA prevention.

WE ARCHITECT COLLABORATIONS

that covert passive heart safety protocol in youth education, sports and medical communities into proactive prevention strategies.

WE MOTIVATE PARENTS

to engage in neighborhood prevention (doctors, coaches, schools friends and family) to advance their own child's well-being.

Parent Heart Watch is a dynamic and transformative platform that cultivates courageous champions by transitioning them from debilitating grief, or by marshaling the power of their survivorship, and empowers them to create life-saving community programs. Joined by passionate prevention champions, medical and allied health professionals, this union has been the inspiration for groundbreaking research studies to fill the critical void of data on youth lost to SCA, as well as important collaborations and coalitions that advance prevention. Our comprehensive education and compelling best practice models have inspired the creation of model primary and secondary prevention programs in nearly every state and over 100 communities across the nation, impacting more than a million youth and counting. Our program drives the national dialogue on youth SCA/SCD prevention, with PHW continually working to motivate education, sports, medical and policy-making stakeholders to address a syndrome The Wall Street Journal has called “one of medicine’s most catastrophic and little-understood events.”

Our Focus

• Awareness of sudden cardiac arrest and its true incidence in youth

• Early detection of heart conditions through recognition of warning signs and risk factors and
preventative screenings

• Cardiac Chain of Survival training

• Widespread & proper placement of automated external defibrillators (AEDs)

• Cardiac emergency response planning anywhere youth congregate

• Mandatory & systematic registry on the incidence of SCA/SCD in youth

Our History

Parent Heart Watch was founded by four mothers who lost a seemingly healthy child to sudden cardiac arrest. They came together from different parts of the country, to honor their children’s memory. From this grassroots movement sprang a national organization dedicated to protecting youth from SCA. The Medtronic Foundation, our founding sponsor, provided a generous grant to support the inaugural meeting of the organization in Las Vegas. Since 2005, Parent Heart Watch has continued to tell the true stories of the devastation SCA has on our youth, as well as stories of survivors who are alive because of primary or secondary prevention strategies.

Parent Heart Watch is a 501(c)3.