Aidan, age 7, ran several drills during soccer practice and after scoring a goal collapsed. He appeared to be having a seizure.  His coach recognized he was not breathing and began CPR immediately.  EMTs used an AED; after several shocks and repeated doses of medication they were able to get a heartbeat.  He was taken to the hospital where a CT of his brain indicated brain damage.  He was then flown to a children’s hospital, where he remained on a ventilator for 11 days.  He never regained consciousness.  On the 11th day Aidan’s kidneys and liver were donated.  Prior to his death, he did not display any symptoms that his family would have recognized.

Genetic testing revealed he had a preexisting heart condition, Long QT Syndrome genes 3 and 14.  After Aidan’s death, his baby brother, mother, grandmother and aunt also tested positive for Long QT Syndrome.